#chronicpain

Mindfulness isn't just good for you, it's good for society too. 'Can Self-Compassion Change the Way You See Society?' greatergood.berkeley.edu/article/item... #anxiety #stress #depression #deepermindfulness #vedana #feelingtone #headspace #ArtOfBreathing #opiods #PTSD #pain #chronicpain

Can Self-Compassion Change the...

Kimberlee Pleziakim_plezia
2026-02-03

“My capacity counts” doesn’t mean giving up on growth or healing.

If today looks like rest, that counts.
If today looks like doing one small thing, that counts.
If today looks like simply getting through the next hour, that counts.

You are not behind.
You are responding to the body you have today.

💬 I’d love to hear from you:
What does your capacity look like today—physically, emotionally, or mentally?





2026-02-03

Browsing for thumb support braces and stumbled on this Beigeist nonsense #beigeparty #chronicpain #humor

A cropped screenshot from an e-commerce site showing three color options of a thumb and wrist brace. The selected color is beige, described as "ew Beige"
2026-02-03

I had an awful reaction to gabapentin, so now I have pregbalin (lyrica.) I took my first dose about an hour ago, and I could feel the moment it began to work. Just warmth, a bit of mental ease, and...no pain. Almost like an opioid in the warmth and sense of calm. No agony while climbing the stairs. I am cautiously very optimistic. As long as my chest doesn't start to tingle, this might be OK. (digits crossed!) #pain #chronicpain #fibromyalgia #chronicillness

2026-02-03

How can we manage our wellbeing when interacting with others online?

actionforme.org.uk/resource/be

"In this article, we start a conversation about life online, with some reflections on how to manage our wellbeing in this environment."

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #LongCovid #chronicillness @mecfs #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie

Behind the screen
From InterAction 120, published autumn 2025


How can we manage our wellbeing when interacting with others online?

SPEED READ

In our digital age, we can communicate in various ways. We can form relationships online that are meaningful, valuable and supportive. There are real people behind the screens. This has both benefits and challenges. In this article, we start a conversation about life online, with some reflections on how to manage our wellbeing in this environment.

***
Kimberlee Pleziakim_plezia
2026-02-03

A quiet nighttime check-in for those living with chronic pain or chronic illness.
No fixing. No advice. Just honesty and shared experience.

Dhiyanahbydhiyanah
2026-02-03

Quiet moment of while getting in-person references for .

I've been dealing with another health emergency that has made my need for mobility aids urgent.

Sales and tips thru my ko-fi shop would help a lot:
ko-fi.com/bydhiyanah/shop

Thank you for any boosts or buys 💚

Photo of a cropped view of a sketchbook at an angle on a dark glass table top. The sketchbook shows a very quick traditional art plein air sketch in graphite of coconut trees in the distance alongside other trees. A mechanical pencil lays beside the drawing. The drawing was made by the artist Dhiyanah Hassan.
2026-02-01

My low back is vetoing my day! Something piriformus something something SI joint. Chronic at this point (several months of pain). Advice welcome!
#chronicpain #advice

2026-02-01

I’m totally in a shit ton of pain and am going to flair tomorrow for probably a couple or more days, but you know it will be totally worth it because I’m at a party with friends and am having an amazing time. 🥳🎉😊😀🥲😩#chronicpain #dysautonomia #pots #mentalhealh

2026-01-31

Floating an exploratory balloon:
Who in #Ontario is interested in doing a spoonie sit-in protest this year?
Lots of logistics to sort out, we'd need lots of helpers - like rides, pillow nest portage, masking, snacks... But let's start w a quick poll.
(and feel free to brainstorm, discuss in the comments) Brand new idea here.
#spoonieSitIn #ONpoli #disabilityJustice #ODSP #spoonies #longCovid #meCFS #chronicPain #chronicIllness
🔄Boosts appreciated for reach.
[edit: more details below 🧵]

2026-01-31

hey you out there, dealing with daily real pain. For whatever reason. I see you from my perch here, dealing with mine. No one can experience it as we do ourselves, but we can recognize others dealing with their own. Wave your hand. I'm on your side. Also try not to clench your teeth to get through it you can crack them and then you have even MORE pain. oxo to infinity.

2026-01-31

‘If it doesn’t fit in with the theory by which I understand the world, it doesn’t exist’.

This is the opposite of scientific method. It is, sadly, too common in doctors’ responses to women’s pain.

Interesting story.

#ChronicPain

theguardian.com/commentisfree/

Jack Groundhog 📷📸🪶jlgrantham
2026-01-30

Vertigo
A thread

i.

There in the dull dark
of cathedral side aisle
I step forth and embark
on a walk for awhile

along the side altars,
for years still unused.
I carry a psalter,
worn leather, deep grooves.

One page is well worn:
of Psalm 22,
for the forsaken with thorns
who called out unto You.

🧵👇🏼

👁️ A view of tall pointed arches down a side aisle of a Gothic cathedral 
📍 St. Vitus’ Cathedral, Prague
📅 9 Jun 2025
📸 Nikon D5600
⚪️ Nikkor DX 35 mm ƒ1.8G
🎞️ ISO 4000, ƒ5, -0.3 ev, 1/125s
2026-01-29

Just did a video call with my new provider (internal medicine) , and she offered me palliative care. I'm kind of stunned. This is a good thing, right? I thought it was only for dying people, but apparently not? Is anyone else more experienced with this type of care? How is it going for you? #mecfs #chronicillness #chronicpain #disability

CRPSSelbsthilfeCRPSSelbsthilfe
2026-01-29

Ein Urteil des Sozialgerichts Karlsruhe (14.04.2020) zeigt, dass Versorgungsämter den Grad der Behinderung häufig rechtswidrig und ohne ausreichende medizinische Begutachtung festsetzen.
bit.ly/45smUaU

Client Info

Server: https://mastodon.social
Version: 2025.07
Repository: https://github.com/cyevgeniy/lmst