How can we manage our wellbeing when interacting with others online?
https://www.actionforme.org.uk/resource/behind-the-screen/
"In this article, we start a conversation about life online, with some reflections on how to manage our wellbeing in this environment."
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #LongCovid #chronicillness @mecfs #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
A quiet nighttime check-in for those living with chronic pain or chronic illness.
No fixing. No advice. Just honesty and shared experience.
#ChronicIllness #ChronicPain #SpoonieLife #DisabledVoices #NightCheckIn #InvisibleIllness #ChronicFatigue #YouAreNotAlone
Winter tried it.
Illinois chose violence.
I chose blankets, paw balm, and professional supervision. 🐾❄️
Mama’s healing. I’m watching.
Care doesn’t require performance.
#ServiceDog #DisabledCreator #ChronicIllness #SpoonieLife #AustralianCattleDog #FridayTakeover 💜
#ChronicIllness #InvisibleIllness #spoonie #MyalgicEncephalomyelitis #MECFS #ChronicFatigue #ChronicPain #disability #autoimmune #Spoonies #SpoonieCommunity #LongCovid #ChronicIllnessAwareness #ChronicIllnessSupport #ChronicIllnessLife #ChronicPainLife #InvisibleDisability #DisabilityAwareness #spoonieproblems #spoonielife #ChronicIllnessAdvocate #ChronicIllnessWarrior #Disabled #Health #Fatigue #ChronicIllnessCommunity
#Blogging #Blogger #WritersOfMastodon #Writing #AmWriting #WritingCommunity
#LifeUnscripted #ChronicIllness #InvisibleIllness #spoonie #MyalgicEncephalomyelitis #MECFS #ChronicFatigue #ChronicPain #disability #autoimmune #Spoonies #SpoonieCommunity #LongCovid #ChronicIllnessAwareness #ChronicIllnessSupport #ChronicIllnessLife #ChronicPainLife #InvisibleDisability #DisabilityAwareness #spoonieproblems #spoonielife #ChronicIllnessWarrior #Disabled #Health #Fatigue #ChronicIllnessCommunity
Music has always felt like a bridge to me.
Between who I was, who I am, and who I’m trying to survive into.
Between worlds. Between bodies. Between silence and meaning.
🖤 “Music for the Haunted Meat Suit”
#ChronicIllness #Disability #MusicIsMagic #DisabledWriter #SpoonieLife
https://dreamingofdragonscom.wordpress.com/2026/01/28/music-for-the-haunted-meat-suit/
A topic of interest to some in #chronicillness community who could benefit from home visits
News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111
https://www.annfammed.org/content/24/1/44
#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability
Personal update.
The last couple of weeks have been rough. I caught a nasty GI bug on top of an already fragile system, and for a few days I couldn't keep anything down at all. I ended up in the hospital on the 19th for IV fluids and meds, which helped stabilize things.
Since then, I've been on a mostly liquid diet with some very soft foods, under the guidance of a functional medicine doctor. That includes medical food shakes to replace some meals, since solid food hasn't been going well for a while and I likely wasn't getting enough nutrients.
I'm about 5–6 days out from the hospital visit now. I'm sleeping a lot, still pretty foggy, and don't have much energy yet. My body is also adjusting to the liquid diet, which has meant some lightheadedness and feeling "off." It's not fun, but I'm hopeful this will help in the long run.
If I've been quieter or slower to respond, that’s why. I really appreciate the patience and kindness.
#ChronicIllness #Disabled #SpoonieLife #HealthUpdate
The forever dilemma...
I want to shower but washing my hair feels like a lot of work.
Art workshop and date tonight, so I'll feel way better about myself with my hair done.
It's worth the spoons, I know it is... But I feel so weary this morning. Yay AuDHD executive (dys)function
"Creativity and chronic illness" (from the Chronic Living Therapy newsletter)
https://chroniclivingtherapy.com/creativity-chronic-illness/
Features:
- Ballet dancer, @anilvanderzee
- Red Tree and ME – international collaborative art project
- Jeremy Jeffs, Photography project
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #TheRedTreeandME
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I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.
https://www.aarp.org/livable-communities/housing/info-2020/homefit-guide-download.html
Not sure whether it is mainly of use to those in the US or whether it is pretty international?
#Disabled #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disability
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How Invisible Chronic Illness Adds an Extra Burden to Life
She has ME/CFS herself but the article is not specific to any illness
#invisibleillness #chronicillness #ChronicPain #Spoonielife
#hiddenillness #Spoonies #Spoonie #ChronicallyIll #MEcfs
@mecfs @longcovid
#LongCovid #POTS @pots
"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness"
https://themighty.com/topic/fibromyalgia/feeling-not-disabled-enough-chronic-illness
"How many of you who have fibromyalgia or similar #chronicillness sometimes feel like you’re judged for not being 'disabled enough?'”
#invisibleillness #Spoonie #hiddenillness #Spoonielife #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #MEcfs #
@mecfs
A week in Bed Jail™ isn’t rest.
It’s meds, monitoring, soup-as-survival, and the invisible labor no one sees.
This isn’t inspiration porn.
It’s disabled life, honestly told. 🛌🐕💜
#ChronicIllness #Disability #SpoonieLife #ServiceDog #DisabledWriter #BedJail
I'm more concerned about kids thinking I'm cool and little old ladies thinking I'm kind and have good taste in musicals and canes, than worrying about what most of my peers have to say about me.
I think I've always been like this, but it's intensified as I've become more disabled.
This thought is brought to you by 4:32 am, anxiety about meeting a loved one's kids, and Painsomnia.
#neurodivergent #chronicpainsufferers #painsomnia #spoonielife #mecfs
Even playing the most mindless bits of WoW is enough to sap my mental energy today. Not sure how long that impromptu desk nap was but I'm still decidedly groggy. #SpoonieLife
