#LivedExperience

2026-02-27

This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

#AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

Adam Jacobs đŸ‡ș🇩statsguy@mas.to
2026-02-26

Why do people talk about "lived experience"? What are you supposed to take away from that phrase that you wouldn't understand from the single word "experience"? Is there really such a big risk of confusing it with the experience of dead people?

#Tautology #Jargon #LivedExperience

ClaraTheWriterClaraTheWriter
2026-02-25

Most spiritual books describe transformation as transcendent. Some tell the harder truth.

Maria Vyasa gave me permission to trust my own messy process.

What book was honest about the hard parts?

Read the full essay

medium.com/@clarainsweden/what



ClaraTheWriterClaraTheWriter
2026-02-22

The most important books in my life were never printed on paper.

My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.

Where does your real learning happen?



2026-02-05

2016 Was Not My “Best Year,” Actually

Every so often — and especially in 2026 — I keep seeing this same take float around online: “2016 was the last good year.” People say it like it’s self-evident, like it’s some universally agreed-upon truth carved into the internet’s collective memory. The memes roll in. The nostalgia posts stack up. The playlists get shared. The photos from before everything supposedly went wrong get dusted off and re-uploaded. And every time I see it, I have the same reaction: Bruh. Not for [
]

jaimedavid.blog/2026/02/05/23/

2026-02-03

Update about my deafness, and it isn't good news.

I added my thoughts plus my recent audiogram to the top of my high frequency hearing loss piece from 2024, after my updated hearing test last weekend.
-

#deafness #hearingloss #deaf #highfrequencyloss #hearingaids #InvisibleDisability #Disabled #Accessibility #AccessNeeds #LivedExperience #AssistiveTechnology #Audiology #HearingHealth #HearingTest #BilateralHearingLoss #HighFrequencyHearingLoss #ProgressiveHearingLoss
carasutra.com/2024/12/being-de

Kalvin Carefour Johnnykalvin0x8d0@social.obulou.xyz
2026-02-02
2026-02-01

Drööhn des Tages

ANCST-live in rostock

Die verschiedenen Formen aus Hard-, Metal- und Grindcore sowie Deathmetal finden bei ANCST Ausdruck.
Die berliner Band verbindet musikalische Exellenz mit einen hohen Àsthetischen Anspruch.
Die extreme HĂ€rte ihrer Musik verbindet sich mit Melodien, welche sich nicht anbiedern dennoch die Lauscher spitzen lassen.
Die klug eingesetzten rasenden Gitarren, punktgenau brutalgrovender Blastbeat und kritische Texte sind die Formeln kreativen Songwritings der engagierten Extremetalband.
Genau dieser Punkt zeigt sich in den rauen Livemitschnitt - live in rostock- von 2025. In der wenig bearbeiteten Aufnahme kommt jeder Song zum tragen und wird nicht vermatscht.


Im Extremmetal ist Ă€ußert selten das die Aufmachung der fulminanten vielen Veröffentlichungen so kĂŒnstlerisch wertvoll
rausgehauen werden.

Berlin ist eine Reise wert, ihr Metalheads


#metalhead #keeponrocking #drööhndestages #deathmetal #blackmetal #metal #metalcore #rocker
#ancst #berlin #blackendmxp #livedexperience #liveinrostock
#extremmetal #extremmusic

https://www.ancstcollective.com/
https://youtu.be/W-JslvCZXMI?si=p-jJyTkrWqWTVVCO

Ancstlive in rostock 
Ancst 
2025
Yo Ishida / 石田 葉YoIshida
2026-01-19

It stays calm because it’s designed not to attract people who want to cause trouble.
Starting around March, we’ll slowly add more categories for worries and hobbies.

Nonprofit Organization Yururi Concept

 #PeerSupport

Tate Basildontatebasildon
2026-01-04

You don’t owe anyone optimism. Showing up honestly while living with sarcoidosis is enough. Surviving is not a small thing.
Still here. Still trying.

Bryan (he/him) đŸ‡ș🇾 đŸłïžâ€đŸŒˆresplendent606@climatejustice.social
2026-01-04
Tate Basildontatebasildon
2025-12-31

It’s New Year’s Eve.
Your body does not know this.

Pace yourself. Take your meds. Go to bed early.

The ball drops whether you’re awake or not.

Tate Basildontatebasildon
2025-12-31

Romantic picnic = eating Thai food in the car
in a foggy, cold, windy park
with my wife.
Weather said no. We said still counts.

Tate Basildontatebasildon
2025-12-30

Fell asleep on the couch
with a cat on my chest
like a medically fragile piece of furniture.
Honestly thriving.

Tate Basildontatebasildon
2025-12-30

Went in for one blood test.
Left with three.
A1C, Vitamin D, Vitamin B.
Nothing says chronic illness like “since you’re already here.”

Tate Basildontatebasildon
2025-12-30

Sarcoidosis is rare. Unless you have it. Then it’s extremely well-represented in your daily schedule.

Tate Basildontatebasildon
2025-12-29

Nothing builds character like an immune system that improvises. Sarcoidosis really said “surprise me.”

Tate Basildontatebasildon
2025-12-29

I posted the same chronic-illness content on Threads and X that I post here. Both platforms removed my accounts for rule violations. It’s interesting which kinds of content are considered a problem—and which aren’t.

Tate Basildontatebasildon
2025-12-28

Progress with sarcoidosis isn’t always visible. Sometimes it’s just getting through the day without giving up. That’s not weakness—that’s resilience in its purest form.
Still here. Still trying.

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