‘I Deserve To Live Life’: 29-Year-Old Woman With Rare Body Odor Condition Explains Why She Chose 69-Year-Old Man As Her Lover https://shinemycrown.com/i-deserve-to-live-life-29-year-old-woman-with-rare-body-odor-condition-explains-why-she-chose-69-year-old-man-as-her-lover/?utm_source=dlvr.it&utm_medium=mastodon #TMAU #BodyOdor #HealthAwareness #RareConditions #LoveStory

Has anyone with #PKU heard of Kevin Alexander's podcast "Never Give Up: A Rare Disease Podcast"?

I briefly met him at the ESPKU, and he was absolutely lovely, just making my way through his podcast now!

https://open.spotify.com/show/5jW0TZlMvtnyK6ivW5kFDE?si=433bcf6eb27144e5

#pku #phenylketonuria #geneticdisorder #Podcast #RareDisease #RareConditions

"Alone, we can do so little; together, we can do so much."

This quote emphasizes the power of community and collaboration in driving change, supporting those in need, and fostering awareness and understanding about rare conditions like Cloves Syndrome. By coming together, we can make a significant impact and create a more compassionate and inclusive world.

Visit our websites
www.shrishtisoftech.com

#ClovesSyndrome
#RareDisease
#InvisibleIllness
#RareConditions
#ChronicIllness
#GeneticDisorder

Are you interested in reading more about the #experiences of people living with #RareConditions?

Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Anyone one in the #Sarcoidosis community on here 🙋🏾‍♀️ would love to connect

#Repost @sarcoidosisuk
• • • • • •
We are delighted to welcome Kemi Sulola as our #Charity #Ambassador
• • • • • •

Looking forward to taking on my new role where I can share the #Stories of other,

If you are interested in #sharing your story with sarcoidosis UK please #reach out to me on kemi@sarcoidosisuk.org.

#health #Journey #Community #Conditions #RareConditions #Warriors #Hope #Healing #Artist